The morning after mom got her stem cells back dad and Jon were switching places. We had it set up that the hotel would have a taxi there at 5 am to take dad and I to the airport to pick up Jon & get dad on his flight, and another taxi would pick Jon and I up at the airport for transport back to the hotel. We worked with someone for a week, checking daily to ensure this was all in place. Well, it didn’t work out (go figure). So at 5:15am I ended up yelling and crying in the hotel lobby trying to make the nice man who spoke a little English to comprehend why I was so upset. I give him so much credit, he didn’t get worked up at all, he got us a taxi, and gave me his personal phone so they could make sure a taxi was coming for us & even spoke with the taxi driver who picked us up. The whole morning was a fiasco, but it worked out in the end. Dad was off to the good ole USA, and Jon and I got back to the hotel eventually. The girl we worked with to set everything up met us in the lobby as soon as we walked in the door. She got us checked into our new room, and had our immigration cards stamped and brought directly to our rooms, and had someone switch my stuff to the new room. She was very helpful, and very upset that we had to deal with that. No reason to be upset since it ended up working out.
Once we got settled, off to the hospital we went. Mom was doing much better. Very happy to see Jon, and that he made it safely. She was back to her self just totally wore out. Doc said numbers are good, and she would enter isolation the following afternoon. We spent the day with her, and worried about Dad making it home okay. Lol
Early Wednesday morning, we got to the hospital so we could see mom one last time before isolation started. Doc F came in and went over her numbers, said he was happy, and she would enter isolation around 3pm. So pretty soon in comes a nurse with hair clippers, and points the chair. Guess it’s haircut time! Lol she giggles a little, and gives mom a Mohawk so we can take a pic then off it all comes. Jon told the nurse it was her turn, she giggled shook her head no and out the door she went. We tested out some hats and scarves, there were a couple tears. Even bald, mom is beautiful. I think she looks adorable, even if she doesn’t want to hear it. She got a kick out of all the different colors of hair. It went from blonde to black and every shade in between! Haha
A little rest, and some more fluids. They give a lot of isolation directions at once, and it can be a little overwhelming. Pretty soon they came in, and kicked Jon and I out. I didn’t want to leave, may have been a little misty-eyed. It isn’t easy leaving your mother in a foreign hospital that isn’t very handicap accessible, especially when there is a certain degree of self-sufficiency that they require. A piece of advice – if possible, come before you progress & if that isn’t possible, and you do have a certain extent of disability, bring a companion – you will need it (more on this in a future post). All the things your body is going through, the MS symptoms become exacerbated while here. I’m told this is “normal” and temporary. You may get worse before you get better – but that still doesn’t make it easy.
It has been a tough few days, but the next 10-12 are spent in isolation for mom. She is in good spirits. I was talking to her last night, and she said well I think I’m in for the night. Haha I got a kick out of that, cuz well she’s locked in tight. Through all this she still has her sense of humor, and is one strong woman. Isolation is just blood and urine tests to monitor her numbers while they wait for her new stemmies to take hold & build her new immune system. The posts may not be so often now, as there isn’t much to report.